What is Thalassemia
Thalassemia is an inherited (i.e., passed from parents to children through genes) blood disorder caused when the body doesn’t make enough of a protein called hemoglobin, an important part of red blood cells. When there isn’t enough hemoglobin, the body’s red blood cells don’t function properly and they last shorter periods of time, so there are fewer healthy red blood cells traveling in the bloodstream.
Red blood cells carry oxygen to all the cells of the body. Oxygen is a sort of food that cells use to function. When there are not enough healthy red blood cells, there is also not enough oxygen delivered to all the other cells of the body, which may cause a person to feel tired, weak or short of breath. This is a condition called anemia. People with thalassemia may have mild or severe anemia. Severe anemia can damage organs and lead to death.
OUR AIM
How Thalassemia is passed on (Inherited) from parent to child
Average people are healthy because they have two normal genes for hemoglobin, inherited from both of their parents thus not carrying a thalassemia trait.
Healthy carrier with a thalassemia trait:
These people have have two genes for hemoglobin, one being normal while the other one is altered. They are healthy because one of their gene is working well. They are a carrier because at least one of their parents had an altered gene too.
Thalassemia major:
People with thalassemia major also have two genes for hemoglobin but both of them are altered genes, one inherited from each parent, meaning both of the parents must be carrier.
Message From Founder
Hi, I’m Ibrahim, and I’ve faced the challenges of thalassemia firsthand. I want to help thalassemia patients in Pakistan. My vision is clear: to support and care for them. Let’s work together for a brighter future. We’ll provide treatment, raise awareness, and build a community. Together, we can bring smiles and strength to those in this battle. Join me in making a difference. Donate now!
OUR AIM
Thalassemia Hope Society is a non-profit organization, based in California, dedicated to improving the lives of thalassemia patients in Pakistan. Founded and led by a struggling thalassemia patient himself, our mission is to eradicate the shortages and problems faced by thalassemia patients in Pakistan through public support.
With a primary focus on providing essential supplies to thalassemia centers throughout Pakistan, we aim to ensure that patients have access to the necessary resources for their treatment and care. Additionally, we are committed to offering free testing services, enabling early diagnosis.
We believe in raising awareness about thalassemia, both within the affected communities and the general public. By organizing educational campaigns and initiatives, we strive to dispel myths and misconceptions surrounding thalassemia, promoting understanding and empathy.
Through collaborations with renowned doctors in the United States, we aim to establish state-of-the-art bone marrow transplant and gene therapy facilities in Pakistan. These collaborations will enable us to provide advanced treatment options to thalassemia patients, enhancing their chances of survival and improved quality of life.
Our long-term vision is to work closely with the government of Pakistan, advocating for preventive measures and passing laws that promote thalassemia prevention. By establishing modern thalassemia centers nationwide and implementing comprehensive prevention strategies, we aim to eradicate thalassemia from the country.
Thalassemia Hope Society relies on public support to fulfill its mission. By contributing to our cause, you help us provide vital supplies, free testing, and access to advanced treatments for thalassemia patients. Together, we can raise awareness, establish modern centers, and collaborate with the government to eliminate thalassemia in Pakistan. Join us in our mission to bring hope and a brighter future for thalassemia patients and their families.